THE DANNY GREEN FUND

M: 07979 333283 (Lisa) - E: info@thedannygreenfund.org.uk

HELPING TO FUND BRAIN TUMOUR RESEARCH

SUPPORTING CHILDREN WHO HAVE BEEN DIAGNOSED WITH POSTERIOR FOSSA SYNDROME

Our Contribution to Brain Tumour Research

We attend Parliament regularly, challenging the government and larger cancer charities to invest more in brain tumour research.

One of the reasons that we are so passionate about funding brain tumour research is that Danny’s only hope of a cure from his medulloblastoma brain tumour was the Milan Protocol.

In May 2014, the Milan Protocol was suspended due to the emergence of severe neurotoxicity and the fact that very few children were surviving the treatment. Children continue to be treated with a combination of Radiotherapy and Chemotherapy, but under a different protocol.

Research is the key to finding kinder, less toxic treatments. Without research there will be no hope for a cure.

The Danny Green Fund is proud to have sponsored several days of research at the Brain Tumour Research’s Centre of Excellence at Portsmouth University for a cost of £2,470 per day. Tiles have been placed on the Wall of Hope in Danny’s memory. We have attended a laboratory tour and seen the research team in action.

In the last 2 years we have attended numerous meetings at Westminster with our Patron Rebecca Harris MP (who is also Chair of the All Party Political Group on Brain Tumours) and Brain Tumour Research to campaign for an increase in brain tumour research spending.

Most recently we attended a very successful reception at the Speakers House to launch the ‘Invest in a Cure’ manifesto. The Rt Hon John Bercow gave a speech followed by Sheila Hancock CBE, our Patron Rebecca Harris MP and others effected by the diagnosis of a brain tumour. The reception was also attended by Ed Balls MP, Charles Hendry MP, Sir Peter Bottomley MP, Paul Beresford MP, Mark Durkan MP, James Arbuthnot MP, to name but a few. We met a lot of people who have also been affected by a loved one being diagnosed with a brain tumour. Working together we will find a cure!

Did you know?

Brain tumours kill more children and adults under 40 than any other cancer.
Just 1% of the national spend on cancer research is allocated to this devastating disease.
16,000 people are diagnosed with a brain tumour each year.
The 5 year survival rate is just 19.8% compared to over 50% for other cancers.
Brain tumours are the largest cause of preventable or treatable blindness in children.
Brain tumours are the leading cause of childhood cancer deaths in the UK. Around 500 children and young people in the UK are diagnosed each year. Diagnosis times of childhood brain tumours are longer in the UK than in many other countries.

Our work will be done only when there is a dramatic increase in the research budget.

A visit to the Brain Tumour Research Lab.